The Long COVID Patient Experience Project was developed to connect people living with long COVID and health scientists so that they can learn together about the impact of long COVID and use this information to guide research to solve the puzzle of long COVID.

Have or had Long COVID? Want to share your story? Take the survey here: https://patientscientist.ca/long-covid-survey

The website is a partnership between the BC SUPPORT Unit, the Post-COVID Interdisciplinary Clinical Care Network, Arthritis Research Canada, University of British Columbia, Simon Fraser University and Population Data BC.

Who is eligible?

You may be eligible if you:

• Identify or may be identified as having a disability
• Identify as a woman, trans, or non-binary person
• Are 18 years or older
• Live and receive health care in Canada

What will you be doing?

• You have the option of completing a 20-minute survey and/or a 1-hour interview about your reproductive health and the health care services you received since the beginning of the COVID-19 pandemic.
• You can do the study, or not do the study. The choice you make will not impact the services you use now or later.

How will it work?

• The survey can be done by you online, by telephone or Zoom with a researcher at a time that works for you.
• The interview can also be done by telephone or Zoom.
• You are welcome to do both the survey and the interview.
• If you need any supports or accommodations to participate, please let us know.

What are the benefits of participating?

What you share about your reproductive health experiences during COVID-19 will help make services better for other people during and beyond the pandemic. You will receive a $15 gift card for the survey and a $40 gift card for the interview, to thank you.

Contact us Email wiresearch.utsc@utoronto.ca or call 647-601-4519. Visit our website for more information: www.utsc.utoronto.ca/projects/disabilitySRH

Notes

“Reproductive health” includes experiences related to contraception, abortion, sexually transmitted infections, cervical cancer screening, violence, pregnancy, postpartum health, and the health of your children.

“Disability” comprises a range of disabilities, including those who self-identify as disabled and/or d/Deaf. This definition is inclusive of those who have yet to receive an official diagnosis. We have chosen to be as inclusive as possible, consistent with our commitment to include those with disabilities who remain invisible and uncounted.

This study has been reviewed and approved by the University of Toronto Research Ethics Board #42194.

Researchers at the University of Toronto Scarborough have partnered with the Disabled Women’s Network (DAWN) Canada to design and run this study. This study is funded by Canadian Institutes of Health Research.

The Initial Findings and Directions Report is being presented to the Park Board this coming Monday, July 18, at 6:30pm. The report can be found here:
https://parkboardmeetings.vancouver.ca/2022/20220718/REPORT-SPMobilityStudy-InitialFindingsDirections-20220718.pdf

Please note, this is an initial report of the data collection work that has been done to date and not the completed study. The complete Mobility Study will be presented to the Board towards the end of 2022.