Participants needed for a research project with the Canadian Centre for Elder Law

BCCPD has received the following notice:

Opportunity to Participate

Are you interested in sharing your story about supported decision-making? The Canadian Centre for Elder Law is conducting research into supported decision-making. We believe that people who use representation agreements in their day-to-day lives have wisdom to share about supported decision-making. We are currently talking to people across BC who use or are affected by representation agreements, including:

• People with disabilities and other challenges who are using supportive decision-making to help them make their own decisions

• Designated supported decision-makers

• Family and friends who help people with representation agreements & decision-making

• People acting as monitors

We are hoping to learn more about how agreements are best used and how supports could be enhanced to make supported decision-making more accessible for different people with disabilities.

If you would like to be interviewed, have questions or would like to otherwise participate in this project, please contact Raissa Dickinson at: atrdickinson@bcli.org

People with disabilities who use supported decision-making to make their own decisions will be offered a $20 honorarium in appreciation of their time. Interviews will be approximately 20 minutes long. The deadline to register is September 16, 2013.

You can find out more about the Understanding the Lived Experience of Supported Decision-Making in Canada project at: http://www.bcli.org/ccel/projects/understanding-lived-experience-supported-decision-making

The Canadian Centre for Elder Law is a non-profit organization that conducts legal research, produces educational materials and proposes changes to the law to better serve people in Canada impacting by aging and mental capacity issues.

2014 Consensus Conference on FamilySmart™ & Youth Engagement

BCCPD has received information about the following conference:

2014 Consensus Conference on FamilySmart ™ & Youth Engagement
May 2 -3, 2014
Vancouver, BC

To view the advance notice, please visit: http://interprofessional.ubc.ca/FamilySmart&YouthEngagement/AdvanceNotice.pdf

For more information, please visit the conference website at http://interprofessional.ubc.ca/FamilySmart&YouthEngagement/default.asp. Email marketing.ipce@ubc.ca to get on an enquiry list for updates.

 

Research Study On Supportive Healthcare Decision Making for Diverse Populations

Researchers at the University of British Columbia are interested in talking to patients and/or their family members from diverse economic, cultural and linguistic backgrounds about their views on making important and/or difficult healthcare decisions.

You may be eligible to take part in the study if you are an adult who has a physical disability and/or chronic health condition and have engaged in complex decision-making about your own healthcare, or has been a surrogate decision maker on behalf of a loved one.

The study will involve one 45-60 minute (longer if interpreters are used) in-person interview at a time and location that is convenient for you. You will receive a $15 gift card in appreciation of your time and participation.

The research study is funded by the Canadian Institute of Health Research (CIHR), and has received approval from UBC’s Behavioural Research Ethics Board.

If you would like more information on this research study and/or to arrange to participate in the research, please contact the project research assistant, Kim Taylor: taylorka@exchange.ubc.ca. You may also contact the Principal Investigator, Dr. Anita Ho: anita.ho@ubc.ca.