IPS, a public engagement group working with the Public Health Agency of Canada (PHAC) and Health Canada (HC), is currently working on a project regarding the use and sharing of health data, as well as the need to improve data literacy among Canadians.
IPS is holding an online virtual dialogue via Zoom, during which they’d like to hear from people with disabilities about the sharing of health data in Canada. For example, to allow doctors to share medical records, help patients monitor their own health, and improve health care. They’re particularly interested in hearing participants’ concerns, needs, and perspectives—especially as a member of an equity-deserving group—to increase how data is understood and to find ways to improve health data sharing.
The dialogue takes place on February 11th at 12pm ET and IPS is offering participants an honorarium of $100 for their contribution and time.
If you have any questions or would like any assistance in the registration process, please feel free to email the event manager, Maura at mmartina@publivate.com.
A PHD Candidate at UBC’s School of Social Work is conducting research aimed at generating knowledge on the experiences of transgender and gender-diverse (TGD) people who identify as disabled regarding their access to gender-affirming care (GAC) in British Columbia, Canada. They are leading this study, under the shared supervision of Dr. Hannah Kia (UBC School of Social Work) and Dr. Tim Stainton (Canadian Institute for Inclusion and Citizenship), and are currently recruiting participants.
Selected participants will complete a 60-90 minute interview on Zoom and receive a $50 e-transfer upon completion of an interview. A person may be eligible to participate in this study if they:
Identify as transgender, non-binary or gender diverse (TGD).
Identify as a disabled person- This study validates all aspects of disability identity including invisible ones.
Are 19 years or older and live in British Columbia, Canada.
Have experience with any aspect of gender-affirming care (GAC), including medical interventions and/or psychosocial support.
UBC is sharing a 10-question survey that explores peoples’ experience finding and using free legal information, education, and resources to solve their legal problem (this includes the support of a legal advocate or free legal clinic). The survey will be open until February 28, 2025.
They want to hear from people who:
Are over 18 years of age.
Reside in British Columbia.
Have had a legal problem and looked for free legal information, education, and/or resources to solve their legal issue (Note: the issue does not have to be resolved).
UBC Ethics ID: H24-01341
Principal Investigator: Dr. Catherine Dauvergne
Questions: plei.project@ubc.ca
Momentum, along with partners at Plan Institute, SEED Winnipeg, and the Disability Policy Research Program, are advocating for an alternative pathway which grants automatic DTC
